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Monday, September 27, 2010

Wishing I had all the answers...

So, we're still waiting on our newly rescheduled cleft team appointment, but we had a height/weight check this morning, and, well, S has dropped off the height chart. Six months ago, we finally were on the base of the height chart, and now we've dropped off it. :(

This isn't great news. See, being short is all fine and dandy, but not following your natural growth curve is most decidedly not. When you have a cleft, any midline organ can be affected. Heart, pituitary gland, thyroid gland, .....anything that crosses that center line, can have problems. I need to call up her pediatrician, and request testing on her thyroid and pituitary gland.

I don't want to.

Plain and simple.

I just want to keep enjoying this beautiful little girl, who is such a happy little joy, and leave all this medical crap behind us. Just bury my head in the sand, plug my ears, and loudly sing "lalalalalalalaalalal" to myself....to just scoop her up in my arms and run away.

Sigh.....I better go find the phone and make some appointments. I know God's got us firmly in his arms....

7 comments:

Discovery School at First Baptist Heath said...

Oh sweet friend! I am praying for you and for S.. for your entire family. The Lord has a plan, but sometimes I jsut wish he would send an email outlining what that plan is. Be Strong and know that He is GOD!

Carol said...

Amen. There is no place on this earth that we can go where he has not gone before us. He is in control. I'll pray for the best for S and your family.

Sandy said...

Oh hon! That sucks! And the anxiety that goes with it is sometimes horrible too. Praying for you and S. and the rest of the family.

Anonymous said...

Prayers going up for you and that precious little girl... His strength is made perfect in our weakness!

Debby@Just Breathe said...

((HUGS)) Keeping you in my thoughts, my heart and my prayers.

Tricia said...

I will say a prayer for your sweet little one. (If only burying our head in the sand worked. If only. )

xo*tricia

Bird's Eye View Photography said...

I am sorry about this news-- I will pray that the rest of the doctors have nothing but good news. ((hugs))